Wednesday, July 22, 2015

Great Strides 2015

Our original Great Strides walk was rescheduled this year due to severe weather.  So on June 27th, we were finally able to get together to celebrate our fundraising efforts!  Thanks to all of Emery's Angels we were able to raise $33,729 for the Cystic Fibrosis Foundation!

Every year I am amazed at how generous people can be.  Since Emery was diagnosed 3 years ago we have raised over $70,000 for the Cystic Fibrosis Foundation.

The Foundation is doing so much with that money.  Just recently the FDA approved Orkambi, a new drug that will help cystic fibrosis patients ages 12 and over who have two copies of the f508del gene mutation.  Orkambi is not something that is used to treat the symptoms of CF, it actually treats the underlying cause of the disease!  This would not have been possible without the support of the Cystic Fibrosis Foundation and the money that was raised by families and friends just like us.
It makes a difference!
Thank you!