Monday, June 17, 2013

Clinic 06/12/13

This was E's last clinic visit as a part of the BONUS study.  I'm really glad we were able ot participate in the study and hopefully help researchers to understand how different babies with CF grow in their first year.

We had to do a few extra things this visit. She had a chest x-ray and blood draw that she was not happy about. :(  Her weight is up to almost 20 lbs and she grew an inch since her last visit.  Yay!

Her vitamin D level was pretty low so we'll be supplementing extra vitamin D on top of the AquADEKs she is already taking.  Since most people with CF do not absorb fats properly, they have a hard time absorbing fat soluble vitamins (A, D, E and K) so we have to give her those vitamins with enzymes every day.

She hasn't been on antibiotics since April, and her sputum culture only grew "normal flora" so everything is looking great!

I'm looking forward to a fun-filled summer with my healthy, happy girls!