Wednesday, May 13, 2015

Sinus Problems

I've had concerns for awhile about E's constant runny/stuffy nose and snoring.  It got to the point where we knew it was time to dig further and figure out what the problem was, so we made an appointment with a pediatric ENT.

Right away he noticed several nasal polyps and sent us down to do a CT scan.  He told us we could either try to do it downstairs, or go to Children's and have her sedated if I thought she wouldn't lay still for it.  Luckily she was very cooperative and we were able to get some good pictures!  She's so easy going when it comes to doctor visits.

The CT scan confirmed that she has extensive sinus blockage.  

The picture below shows what the sinuses should look like in a healthy person.  All of the black areas at the top are aerated.  The sinuses and nasal passages should be black like this, showing that air is able to move in and out.

This is a picture from E's CT scan.  The grey color inside her nasal passage and sinuses shows that air is not moving through there.  They are filled with mucus and polyps.  So this is why she can't breathe through her nose!

We scheduled for her to have endoscopic sinus surgery in a few weeks to get rid of this mess.  I think she'll feel like a new person afterwards when she can finally breathe through her nose again!

Now...this is not something that we found during a routine check up.  I had to push for it.  I had to persist because I knew something wasn't right and I didn't feel like anyone was really hearing my concerns.  We had tried over the counter medicines, nasal sprays, decongestant drops, and nothing was helping.  It was time to look deeper.  So for any other CF parents that might be reading this, don't forget that you know your child best and if something seems off, keep pushing until you figure it out!

I'll update again after the surgery.  Please keep E in your prayers!

Wednesday, May 6, 2015

Trying Some New Meds

I keep a journal about E's health where I record when she starts to develop new symptoms or when she starts new medications.  I was looking back at it one day and noticed that she almost always has a runny/stuffy nose.  And then I started paying closer attention and realized I can't even remember the last time she breathed through her nose.  Over the counter meds have not been helping so I talked to her clinic to see if they had any other ideas.  We started a nasal decongestant drop and a nasal steroid spray to see if that will help.  We also talked about her snoring and decided it would be a good idea to see an ENT to find out if there is anything else going on in there.  So she has an appointment on Monday.

She started an antibiotic last week as well for a cough that she couldn't kick.  So we're hoping that with all of these added meds she will get some relief!  I will update again next week after her appointment.