Sunday, September 22, 2013

Clinic 9/11/13

E had a great clinic visit this week!  This is the first time we've been to clinic since she's started walking so it was a whole new experience for her.  She wanted to check out everything in the room and see how it worked.  We had a pretty long wait once we got into our room so she kept peeking her head out the door and waving to the nurses making sure they didn't forget about us!

She gained some weight since her last visit and is almost 22 lbs now.  I have to say that I'm really happy weight gain hasn't been an issue for us so far.  I hear about so many other kids with CF that struggle with that and I can't even imagine how frustrating that would be.  But every child comes with their own set of struggles.  Out of curiosity, I asked how many rounds of antibiotics E had been on since she was born.  In her short 16 months of life she has had 7 rounds of antibiotics for various reasons and a two-week hospitalization for a pulmonary exacerbation where she received IV antibiotics through a PICC line.

By looking at her, you would never know it.  She is a cute little toddler always following her big sisters around the house.  She copies everything they do and everything they say.  She loves playing outside with sidewalk chalk and swinging or sliding on the play set.  She's a typical one year old...exploring and learning and taking it all in.  Sometimes I even forget she has CF, until I look at the clock and realize it's 8:00 pm and we still have to do her nightly treatments!  We have a pretty good system going right now, but as soon as we get used to a certain routine something changes and we add a new medicine or an extra treatment and we have to figure it out all over again.

Luckily we make a pretty good team!