Wednesday, April 27, 2016

Pneumonia and Hospitalization

I always hear people talk about how CF kids can be doing really well and then all of a sudden out of nowhere it changes.  Well let me tell you, it's true!  One Friday afternoon we were eating ice cream and having fun at Chick-Fil-A and about 3 hours later Emery had a fever and was complaining that it hurt to breathe.  I normally wouldn't overreact about a fever and a little cough, but when my baby says it hurts to breathe that got my attention.
After talking with her pulmonologist and trying albuterol, we didn't see any change.  She was still complaining about pain so we took her to the ER to get checked out.  Her chest x-ray looked good, she was negative for flu and RSV, no signs of respiratory distress, so they said it was probably a virus and sent us home.  
The next day her fever was higher, she was still complaining about pain and things just didn't seem right.  We took her back to the ER and they found pneumonia in her upper right lobe.  The difference in her chest x-ray from Friday night to Saturday afternoon was pretty significant.  

She was admitted on Saturday afternoon for a CF exacerbation and started a round of IV antibiotics. 

 We also realized she was constipated and that was another reason she was complaining about pain.  After a couple of days on antibiotics, some miralax, and increased respiratory therapy, she was looking much better and we were told we could finish out her IVs at home.  

Sweet girl staying busy in her hospital room.
Her mood completely changed when visitors came in!

 They put a picc line in on Monday and we went home on Tuesday.  
She was ready to get out of there!


  1. I am so glad your baby girl is back to normal. Cystic Fibrosis seems like a lot to deal with. I have a two year old and I have been to the ER several times. It is always scary when your child is in pain especially when it hurts them to breathe. I hope your little girl stays healthy.