Friday, April 24, 2015

The "Newby" Award

Our local chapter of the Cystic Fibrosis Foundation awarded our team, Emery's Angels, with the "Newby" Award for fearlessly playing a significant role in the chapter though new to the world of cystic fibrosis!

We are honored to be a part of this organization!

1 comment:

  1. Congratulations on your award! I am a 32 year old CFer, and was struck by the similarities between your story thus far and the early days of mine-- diagnosed at the same age, same mutation, etc. I just started a blog about my CF journey based on a wonderful response I got from speaking about it at a CF Education Dinner in Ann Arbor, Michigan. I would be happy to share my "success story" with CF as a guest post on your blog; so many of the people in the audience were parents like you who are figuring this out as they go, and I think my story can be a "light at the end of the tunnel" for people who see a long uncertain road ahead. Feel free to contact me if you would like to know more.