Wednesday, December 17, 2014

Clinic 12/3/14

E's last clinic visit went well.  It's amazing how much she is used to going there now.  As soon as we go in, she knows what she is supposed to do.  We went in the room to do her vitals and before the nurse could say anything she said "can you check my ear?" (temperature), then "Okay, see how tall I am!"  When they asked her what was next she opened her mouth and said "Ahhh" to get her throat swabbed.  :)

She had just finished a 3-week round of antibiotics for a cough that wouldn't go away, so she was feeling great at her appointment.  

We talked a little about traveling with all of her medications and equipment.  We are going on a Disney Cruise soon and we will be flying to Florida and then staying on the ship for 7 days.  I knew I wouldn't be able to sterilize the nebulizer cups properly on the ship so they gave us several disposable nebulizers to take with us.  And the nurse coordinator wrote a letter for us to take to the airport listing all of her meds and equipment, so hopefully we won't have any trouble getting through security with all of this stuff!  It's hard enough traveling with three small children as it is!  If anyone has any good travel tips, I would love to hear them!

1 comment:

  1. Hi there! I wrote a post about traveling with a kid with CF you might find useful. Nothing groundbreaking or anything but maybe you'll find something good in there. Traveling with CF is rough- between the meds and equipment it's a lot of stuff to carry and even more work to administer everything while on vacation. Good luck!

    http://gluemeetspaper.blogspot.com/2013/12/tips-for-flying-with-preschooler-with-cf.html

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