Wednesday, July 31, 2013

Frustrated

Right after we finished her last round of antibiotics, E started up with the runny nose, cough and congestion again.  We tried to keep her nose clear and added in extra vest time to see if we could get rid of it, but it wouldn't go away.  

After 10 days of this coughing and wheezing I took her in to get her throat swabbed to see if she cultured anything this time.  The rule is to put her on antibiotics after she has been coughing for 7 days.  But I don't like the fact that we just automatically put her on an antibiotic without knowing whether or not she actually has an infection.  So that's why we did the throat culture first before starting meds.

Well, now 6 days later she is only growing normal flora.  Nothing showing up in her upper airway.  But her cough is getting worse.  

So what is causing this to keep happening over and over?  I know kids get runny noses and all the junk makes them cough.  That's normal. But hers seems to last forever.  

Is this just a normal CF cough?  Is she always going to sound like this?  What if there is something bothering her that we can't see?

With all this thick, sticky mucus hanging out in there she is bound to attract some bacteria that will cause problems.  So after talking with her CF clinic, the next step will be to take her in for a bronchoscopy.  I'm not really sure how I feel about this.  I want to see if there is something in her lungs that she's not culturing in her upper airway.  But there is also a chance that we won't find anything and she will have gone through all of this for nothing.

So that's where we are.  They are calling me sometime in the next few days to schedule the bronch for Monday and we'll see what he finds (or doesn't find) in there.

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