Wednesday, February 20, 2013

Let's Try Something Else

Three weeks ago, E caught a cold or virus that gave her a stuffy nose and a cough.  Since it didn't go away after a week, the protocol is to start an antibiotic to treat her for an upper respiratory infection.  She took Keflex for 2 weeks and the cough is still lingering around.  It's not worse, but it's not gone.  After talking to her CF Clinic nurse today, we decided to start another oral antibiotic - Cipro.  She'll take this for two weeks and if the cough is still not gone, we'll go in for a bronchoscopy. 

Why do we have to put her on all of these antibiotics if it's just a junky cough and some congestion?
Her sisters have the exact same thing and we're not treating them for anything.

Here's why...
Since we all passed around this respiratory virus, we all had coughs and congestion.  The good news for us is that we are able to get rid of the congestion on our own eventually.

E doesn't really get to just "wait and see" if it goes away.  The mucus in her lungs is so thick that it is the perfect place for bacteria to hide out and cause problems.  That's why if a cough lingers around like this, it is usually a sign of a CF flare up in her lungs.  Every time she has a CF flare up, there is the possibility of causing permanent damage/changes to her lungs.

So, if antibiotics and extra airway clearance (Chest PT) are what she needs, then that's what we'll do.
Let's hope this does the trick!


  1. Aw. Hope cipro takes care of the cough. Have you ever been on it? Make sure to give her lots of probiotics throughout the day. We usually have to dose 3-4 times a day of probiotics for cipro. It's soooo hard on the gut. We battled cipro for a few months when trying to get rid of pa. Good luck! She is a cutie!

    Mommy for Madeline blogger- sandy

    1. No she's never been on it. Thanks for the tip!

  2. Hi Amy!

    Well I hope little E feels better! She is ADORABLE! Cipro is a good drug to be on and hopefully will kill that PA and that knock out that bug that is in there.

    See when WE get sick it takes us a lot longer to get rid of the bug because we already have bacteria in our lungs. The bug aggravates the PA and cause it to go hay wire. There is the possiblilty for the lungs to get damaged but I am not sure what those percentages are. You have to remain positive and stay on top of colds like this which you seem to be doing an AWESOME job!

    Praying for E and your family to knock out this cold!

    Lastly, I think you are doing a great job Amy! You have only had E in your life for 7 months but I can tell you are one kick butt CF mama already! Keept it up mama!!!!

    1. Thanks John! I'm glad to have people around who know more about this stuff than I do. I'm sure I'll have a million questions for you as time goes on!