When people ask me how E is doing I never know what to say. I don't know if they're asking just a general question or if they're asking for CF specifics. I don't want to offer up too much information and make it all awkward but then again I don't want to blow them off if they really want to know about what's going on. So I usually just say "great" and move on to another subject.
I need to get better about this. I have absolutely no problem with people asking questions about her Cystic Fibrosis. I love when people genuinely care about what's going on in her life and want to be involved. But I also don't want that to be the only thing people know about her. She's so much more than a disease. She's a sweet, curious, happy little girl that will light up a room with her smile! She's perfect.