Wednesday, October 31, 2012

Day Two

Dr. R came to see us today. He said E was looking good and reminded me that we would be here for a minimum of 14 days to finish out these antibiotics. He said she didnt need to wear the oxygen anymore and they took her off of IV fluids too.  I asked if her throat culture ever grew anything else and he said it didn't. Then I asked about the antibiotics and what exactly we are treating.  He told me that the only way to know what is going on in her lungs is to do a bronchoscopy, and it's not something we can do while she's on antibiotics because most likely it won't give an accurate result.

So the protocol for this type of situation is to go ahead and treat her for pseudomonas aeruginosa. Pseudomonas is the bacteria that causes the most problems for people with CF. Once they get it, it's hard to completely get rid of. So even though we don't know that's what it is, it's better to err on the side of caution and start those meds as soon as possible. The Bactrim is to treat Staph Aureus, which is something she has cultured a few times in the past and may be what is causing her cough as well.

Basically, we won't know anything new while we're here. We're hoping for her cough to be gone within two weeks and after that if she gets sick again soon we would look into doing the bronchoscopy.

I also mentioned that I didn't expect her to be hospitalized already at 5 months old and Dr R said he really didn't either. It's not something he sees all the time with infants but that doesn't necessarily mean this will keep happening a lot in the future.  We just have to wait and see.

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